Featured Partner

Your Clinical Twin: AI Support Built Around Therapeutic Expertise

Built by a psychologist, Ecko Health is an AI mental health platform designed to reduce admin burden and support continuity of care between sessions.

Designed as an extension of your clinical self, Ecko learns your style and remembers what matters across your caseload.

Our interview with Ecko’s Clinical Lead explores what it means to use AI in a way that strengthens rather than replaces the human side of therapy.

Free for clinicians
Guided by your treatment plan
Your voice, your approach, amplified

Psychologically Coping With Loss of Vision

by Kiah
(Arizona, USA)

Hi, I was diagnosed with the eye disease Retinitis Pigmentosa at age 8. The doctors say that I have give or take 7 years before I will become legally blind. There is no treatment or cure.

I have learned as much as I can about the disease itself. But I am having a hard time finding any sources of information that explore the relation of psychological impact and issues that may arise with the loss of a sense, specifically vision.

I want to find some books that explain and analyze how to emotionally cope with this. Any sort of practical examples of how other people were able to learn how to cope with the loss of vision, would be really helpful.

I know its really specific, and I don't expect there to be much of anything. all I can find so far is how to rehabilitate physically (i.e how to use a cane or guide dog, learning braille, computer programs, transportation etc.) I don't need help with those, just with the psychological impact side.

Comments for Psychologically Coping With Loss of Vision

Average Rating starstarstar

Click here to add your own comments

Rating
starstarstar
From a fellow RPer
by: Vicki

I can't tell you of studies that have been done since I know of none but what I can tell you, as someone who was diagnosed with RP at the age of 9 and who is now 50 & legally blind by state definition, (less than 20 degrees of visual field though I still have usuable central vision), that the best way to learn how to cope is to talk to those who are doing it.

There are many wonderful groups, mailing lists & web sites out there that will connect you to those of us who can guide you through the trials & tribulations as well as the smiles you'll have to find to keep you moving forward through this.

Let me set you in at least one helpful direction.

http://groups.yahoo.com/group/RP-Friends/

Look for a member named Dan Huhn in particular.

I do hope this helps.

Click here to add your own comments

Join in and write your own page! It's easy to do. How? Simply click here to return to Psychology Q & A.